So our first day home with out have to go to any doctors or scans or anything!
It was a pretty much easy going day, we did a a few easy workouts and mostly got caught up on TV. We did have the Home Cares admin stop by for a little wile, she just had some paperwork to fill out and questions to ask. I am going to say that home PT starts on Monday and then on Wednesday, and Friday.
So thats about that for today, I know nothing really exciting. :)
Saturday, October 16, 2010
Thursday, October 14, 2010
Days 30 and 31
Hey everyone, sorry I keep posting eraticly lately.
Ok so yesterday we were released from rehab!!!! YEA!!!! It was still a full day of therapy and goodbyes. Dona still had to work hard and they made sure that I was able to contenue her therapy at home. So I have a lot of handouts to make into a therapy book for us to use. :) We will still have home therpy, it will just be three days a week tho. Once we get into a routeen we will get back into aquatherpy.
Dona was glad to get home at the end of the day, play the cat, and sleep in our bed. So it was an early night for us.
Today we slept in and just took it easy this morning. This afternoon we needed to get all the baseline scans done and pick up a rental wheelchair. The first scan venous scan where they do a sonogram of her blood viens. Then we had a couple of hours befor her MRI so it was off to the park for a walk in the sun and just hang out. And right now as I post this she is getting her MRI.
Then it will be off to the apartment for dinner and Grey's!
Sleep tight everyone!
Ok so yesterday we were released from rehab!!!! YEA!!!! It was still a full day of therapy and goodbyes. Dona still had to work hard and they made sure that I was able to contenue her therapy at home. So I have a lot of handouts to make into a therapy book for us to use. :) We will still have home therpy, it will just be three days a week tho. Once we get into a routeen we will get back into aquatherpy.
Dona was glad to get home at the end of the day, play the cat, and sleep in our bed. So it was an early night for us.
Today we slept in and just took it easy this morning. This afternoon we needed to get all the baseline scans done and pick up a rental wheelchair. The first scan venous scan where they do a sonogram of her blood viens. Then we had a couple of hours befor her MRI so it was off to the park for a walk in the sun and just hang out. And right now as I post this she is getting her MRI.
Then it will be off to the apartment for dinner and Grey's!
Sleep tight everyone!
Tuesday, October 12, 2010
Calling Dona at home.
All right everyone, I know you all want to talk with her and wish her well and all that good stuff.
If I could have you all do me a favor and just wait a little longer OK?
Please let her come home and rest before blowing up her phone. LOL!
I will let you all know when the phone lines are open and you can start calling and coming by then.
Thank you all for your understanding.
Joe
If I could have you all do me a favor and just wait a little longer OK?
Please let her come home and rest before blowing up her phone. LOL!
I will let you all know when the phone lines are open and you can start calling and coming by then.
Thank you all for your understanding.
Joe
Day Twentynine
Well it was Dona's victory day!!!!!
So it was pretty much Dona showing off for everyone, she mostly got dressed by her self in the morning. Altho we did do a lot of chatting with our OT therapist, so it took longer then most days LOL! (no points lost for that ;) )
Then it was down stairs for OT, where we went over things we will need to do at home to keep up her progress with her arm and hand. Its mostly stretches and some work outs. Showing off here she picked up small blocks that were on one set of pins that go thru the middle of the blocks, and then set them down on another set of pins. It was a great show of her fine motor skills!
Next up was TR, here she gets to just play around with her yarn. Today she got to use some toys that she ordered to help her keep tension on the yarn in her left hand. OK you knitting girls out there, she is going to need your help working out the details with that. :D I am sure some one out there will help her out. LOL!
Now we are on to Speech Therapy, where today she really worked on her voice instead of her mind. LOL! We also got some homework here, so its a good thing I have noise canceling headphones. :) Just kidding sweetie!
Then it was on to our last brain injury class!!!! YEA!!!!!
MMMMMM Lunch! then a little nap.
After the nap it was on to PT, where she walked around for a little wile. Then it was on to the stairs, NOT Dona's favorite thing to do btw!
After the stairs we did work outs that will help keep her legs and hips strong.
Then back to the room for a better nap before we went to aquatic therapy, there it was just more workouts, and working on her balance. It looked like she was having fun with the therapist making fun of me! LOL I don't know WHAT I did to deserve that. ;)
Back up to the 8th floor for a shower, dinner, and get ready for her last night at the Immanuel Medical Center!!!
Sleep tight everyone, Dona will be home tomorrow!
So it was pretty much Dona showing off for everyone, she mostly got dressed by her self in the morning. Altho we did do a lot of chatting with our OT therapist, so it took longer then most days LOL! (no points lost for that ;) )
Then it was down stairs for OT, where we went over things we will need to do at home to keep up her progress with her arm and hand. Its mostly stretches and some work outs. Showing off here she picked up small blocks that were on one set of pins that go thru the middle of the blocks, and then set them down on another set of pins. It was a great show of her fine motor skills!
Next up was TR, here she gets to just play around with her yarn. Today she got to use some toys that she ordered to help her keep tension on the yarn in her left hand. OK you knitting girls out there, she is going to need your help working out the details with that. :D I am sure some one out there will help her out. LOL!
Now we are on to Speech Therapy, where today she really worked on her voice instead of her mind. LOL! We also got some homework here, so its a good thing I have noise canceling headphones. :) Just kidding sweetie!
Then it was on to our last brain injury class!!!! YEA!!!!!
MMMMMM Lunch! then a little nap.
After the nap it was on to PT, where she walked around for a little wile. Then it was on to the stairs, NOT Dona's favorite thing to do btw!
After the stairs we did work outs that will help keep her legs and hips strong.
Then back to the room for a better nap before we went to aquatic therapy, there it was just more workouts, and working on her balance. It looked like she was having fun with the therapist making fun of me! LOL I don't know WHAT I did to deserve that. ;)
Back up to the 8th floor for a shower, dinner, and get ready for her last night at the Immanuel Medical Center!!!
Sleep tight everyone, Dona will be home tomorrow!
Day Twentyeight
Hey everyone
It was just another day at therapy for Dona, and I was out running errands getting the house ready for her to come home.
Well it turns out when I am not here, Dona does new things to surprise me. :) She is now starting to use her left hand to pick things up and put things down. WITH control!!!! It's so cool to see her getting stronger and more control over her body!
Tomorrow we have a full day, it's her victory day! (as Dona rolls her eyes LOL) So what that means is we see how much she can do all on her own. That will be fun to see what she can do wile I just have to sit there an watch. :)
I be back tomorrow with a full report on how she did.
Have a great day everyone!
It was just another day at therapy for Dona, and I was out running errands getting the house ready for her to come home.
Well it turns out when I am not here, Dona does new things to surprise me. :) She is now starting to use her left hand to pick things up and put things down. WITH control!!!! It's so cool to see her getting stronger and more control over her body!
Tomorrow we have a full day, it's her victory day! (as Dona rolls her eyes LOL) So what that means is we see how much she can do all on her own. That will be fun to see what she can do wile I just have to sit there an watch. :)
I be back tomorrow with a full report on how she did.
Have a great day everyone!
Sunday, October 10, 2010
Days 25, 26, and 27
Hi Everyone,
Sorry I have taken the last three days off, but its been busy! We had Rachel, an outing, and lots of prep before Dona comes home. Not to mention two days of PT.
OK first things first, Dona is doing great and has let me tell everyone what is going on. At the doctors appointment on Wednesday we found out what was in her head. Some thing with a big medical name! LOL!! Alright so I can remember what they called it. But they way they grade tumors in the brain is 1 to 4, 1 being benign and 4 being OMG this is bad. What Dona had was mostly grade 2, but it was just starting to have level 3 growth when they removed it. So what this means is we have to treat it like it was level 3, so chemo treatments it is.
So chemo sounds really bad doesn't it? Well what we are getting is what the doctor likes to call "chemo lite", and what that means is a little nausia, constapation, and we will have to keep an eye on her blood counts. So the good news about this is the meds she is on now for nausia and constapation will not have to change to something stronger. The chemo meds are given on a 28 day cycle, so in the evening before she goes to bed she will take one pill a night for 5 nights and then we wait for 23 days for the next cycle to begin. The fact that Dona is taking it only at night should mean that the worst of the side affects will happen wile she is asleep. So for 5 days she will be feeling a little down and the rest of the time she should be ok.
They are going to start with 6 cycles and then do tests and scans to make sure its doing good. If it is then 6 more cycles. If not well we might have to look into radiation treatments.
Now for the brain flap, the doctor wants to wait for 8 to 12 weeks before she puts it back in. She wants to make sure that the swelling is all the way down, and see how Dona reacts to treatments before she puts it back in. Plus she wants Dona to get stronger before we do another surgery.
LOL well thats all the big doctor stuff in a nut shell! I am sure I have missed a few things as I haven't really slept in three days. :) Also the cat is attacking me, so now I have to go before she draws blood.
Have a good night everyone, Dona and I both thank you for your support!
Joe
Sorry I have taken the last three days off, but its been busy! We had Rachel, an outing, and lots of prep before Dona comes home. Not to mention two days of PT.
OK first things first, Dona is doing great and has let me tell everyone what is going on. At the doctors appointment on Wednesday we found out what was in her head. Some thing with a big medical name! LOL!! Alright so I can remember what they called it. But they way they grade tumors in the brain is 1 to 4, 1 being benign and 4 being OMG this is bad. What Dona had was mostly grade 2, but it was just starting to have level 3 growth when they removed it. So what this means is we have to treat it like it was level 3, so chemo treatments it is.
So chemo sounds really bad doesn't it? Well what we are getting is what the doctor likes to call "chemo lite", and what that means is a little nausia, constapation, and we will have to keep an eye on her blood counts. So the good news about this is the meds she is on now for nausia and constapation will not have to change to something stronger. The chemo meds are given on a 28 day cycle, so in the evening before she goes to bed she will take one pill a night for 5 nights and then we wait for 23 days for the next cycle to begin. The fact that Dona is taking it only at night should mean that the worst of the side affects will happen wile she is asleep. So for 5 days she will be feeling a little down and the rest of the time she should be ok.
They are going to start with 6 cycles and then do tests and scans to make sure its doing good. If it is then 6 more cycles. If not well we might have to look into radiation treatments.
Now for the brain flap, the doctor wants to wait for 8 to 12 weeks before she puts it back in. She wants to make sure that the swelling is all the way down, and see how Dona reacts to treatments before she puts it back in. Plus she wants Dona to get stronger before we do another surgery.
LOL well thats all the big doctor stuff in a nut shell! I am sure I have missed a few things as I haven't really slept in three days. :) Also the cat is attacking me, so now I have to go before she draws blood.
Have a good night everyone, Dona and I both thank you for your support!
Joe
Thursday, October 7, 2010
Day Twentyfour
Hey I hope everyone had a great day, Dona and I sure did!
Well we had another outing today, we came back to the apartment for our home assesment. Good news there, we don't have to do a major remodel to get the house set up! Just a tub bench and a couple of handles installed, the rest of the place is pretty much easy access.
After stopping by the house and playing with the cat, we went out to lunch with a few of the girls from rehab for our public outing. That was pretty much parking and going into a restaurant to see how our new status has affected our daily life. Well it looks like as long as we are careful and take our time it should not be a problem. Its a good thing that the world has be made more friendly for people with disabilities! :)
Then it was back to the hospital for a little PT and of course a swim!
It was a long day but oh so worth it, so I am kinda tired and I will get back to you tomorrow as we are back on our regular PT schedule.
Have a good night everyone!
Well we had another outing today, we came back to the apartment for our home assesment. Good news there, we don't have to do a major remodel to get the house set up! Just a tub bench and a couple of handles installed, the rest of the place is pretty much easy access.
After stopping by the house and playing with the cat, we went out to lunch with a few of the girls from rehab for our public outing. That was pretty much parking and going into a restaurant to see how our new status has affected our daily life. Well it looks like as long as we are careful and take our time it should not be a problem. Its a good thing that the world has be made more friendly for people with disabilities! :)
Then it was back to the hospital for a little PT and of course a swim!
It was a long day but oh so worth it, so I am kinda tired and I will get back to you tomorrow as we are back on our regular PT schedule.
Have a good night everyone!
Subscribe to:
Posts (Atom)